Angels & Heroes

Meet the beautiful faces of Childhood Cancer.
Every one of these little heroes has been through more in their young lives than anyone ever should.

Not all superheroes wear capes

Cleo

Cleo

Cancer
Cleo
Cleo

Cancer

Cleo

Ryder

Ryder

Medulloblastoma
Ryder
Ryder

Medulloblastoma

Our amazing and special Golden Octopus Hero this week is the fantastic Ryder.
He has been through so much and still has so far to go.
He can't smile due to the damage his tumour and surgeries have caused and he will have lots of rehabilitation and we will be the first to post a pic of him smiling as soon as his wonderful mum Jemma shows us one.
Thank you Jemma and Aaliyah his beautiful sister and his best mate Hiro for sharing his story with us.

Hi my name is Jemma and my son Ryder was diagnosed on the 11th Feb 2015 with a Medulloblastoma Brain Tumour.
He has/is/will endure so much from his brain injury and harsh treatments, but most of the time he remains a happy little boy.

Ryder remains NED after having a full resection, 6 weeks of Radiotherapy and 7 rounds of Chemotherapy. He has 2 more rounds left then we can start to concentrate more on his rehabilitation.

Ryder loves nothing more than being at home with his family. He has a beautiful older sister Aaliyah whom he adores. He also has a very special friend at home by the name of Hiro. Hiro was born on the same day as Ryder's tumour resection and he is a gorgeous Ragdoll. Ryder named him after the little boy in Big Hero 6, his favourite movie. ♥️

Thank you so much Jemma, this is so unfair that Ryder has to suffer all this and yet he is so young.
We need to stand together and fight to spread awareness and make the government listen to increase funding into research for our children.
We will keep fighting Ryder and you keep fighting too little buddy.
All my love Keely xx.

Will

Will

Acute Lymphoblastic Leukemia
Will
Will

Acute Lymphoblastic Leukemia

Will was diagnosed with ALL in August 2006 when he was 18 months old.
He had many many complications during his 14 month stay in Brisbane,
part of them meant he ended up loosing his oesophagus (they made him a new one out of his stomach),
terrible chest issues and an ongoing chronic cough.
Will is just beautiful and still has an amazing smile.
Thank you Will and we will continue to fight.
Love Keely xx

Olivia

Olivia

Acute Lymphoblastic Leukaemia
Olivia
Olivia

Acute Lymphoblastic Leukaemia

Our beautiful Golden Octopus Hero is the lovely Olivia.
Her Mum Allison, Dad Michael, Sisters Brooke and Rachael, brothers Nathan and Scott and Labrador Piper bring us her story to share.

Olivia's journey with Acute Lymphoblastic Leukaemia began late November 2015. She had started limping on one leg, then both of them, she started to lose her appetite as well as not wanting to wake up til lunchtime. Eventually Olivia collapsed from the pain in her legs and had to be taken by ambulance to our local hospital. Investigations were carried out over the next few days and we were flown to Brisbane's Lady Cilento Children's Hospital where a final diagnosis was made. It was also found that she'd had stress fractures to both tibias that had gone undetected on her initial x-Ray's.
She started her intensive chemotherapy straight away. This six month phase turned into eight months as Olivia suffered numerous side effects including a mini seizure due to a blood clot in the lining of her brain, a seperate incident where she had mild swelling of her brain and a swollen disc in one of her eyes. She also had a stay in P.I.C.U after experiencing an infection to her port and very low blood pressure.
Olivia has experienced continuous pain in her bones and this has restricted her ability to fully carry out her physio and she is currently still unable to stand or walk yet.
She is now in week 3 of her 2 years maintenance treatment and is showing signs the pain levels in her legs have lessened and we are feeling confident Olivia will be able to participate more fully with her rehabilitation exercises.
We are staying positive and hope and pray Olivia remains in remission and she manages to walk again as soon as possible.
Thank you for reading our daughter's story and for your help.

We cannot thank you all enough for sharing your beautiful Olivia with us.
She should be at home singing and dancing to her favourite pop stars not sitting in a hospital bed and missing her childhood.
Olivia I promise we will continue to fight and raise awareness so one day no child will suffer.
All my love Keely xx

Daphnie

Daphnie

Langerhans Cell Histiocytosis
Daphnie
Daphnie

Langerhans Cell Histiocytosis

Our absolutely gorgeous Golden Octopus Hero is a little country cutie Daphnie.
She is just the most beautiful and toughest little girl you could ever wish to meet.
Daphnie has the same cancer as I do, unfortunately there is no cure but she is a fighter and she will win.
Her amazing family have so kindly shared her story with us to help raise awareness for childhood cancer but also to raise awareness that LCH is a cancer that people don't even realise exists.
Thank you so much, this is her story as told by her loving family Sarah, Clinton, Callum, Ebonnie and Milton.
With help from her dogs Grunt and Jacko and all the chickens. Xx

Daphnie was 10 months old on the 13 march 2014 when we got the devastating news that our little girl has multi system Langerhans Cell Histiocytosis (LCH).
Daphnie had LCH in her orbital region, liver, spleen, skin and bone marrow.
Daph has been on numerous different chemo treatments, relapsing twice on treatment.
Daph has still been receiving treatment for the last 635 days and still has a long road ahead.
Daphnie is a real little fighter.

That's nearly her whole life on treatments and she still has a huge battle ahead of her.
We need more help to come together as one voice and raise awareness that our kids can't fight alone, to let the government know our kids need more than 4% funding.
Daphnie together we will fight, together we will win.
You have my promise to never give up fighting.
Love always Keely xxx

Tobi

Tobi

Cancer
Tobi
Tobi

Cancer

Tobi

Madi

Madi

Glioblastoma
Madi
Madi

Glioblastoma

Our beautiful Golden Octopus Hero this week is the amazing Madi.

Her beautiful family Natalie, Bryan, Brayden and Cooper together with Rolly her Staffy have been so kind to share her story with us.
Madi is in for the fight of her life but she is a true hero and will fight this beast.
We will be right there fighting with you Madi.

Hi our daughter Madison was 10 years old when she got diagnosed with stage 4 glioblastoma brain cancer.

Madi was an energetic girl who always loved to go out and play with her friends and loved her dancing.

Then we got hit with the worst news ever, that our baby girl had brain cancer, we sat our family down, with Madis' two brothers Brayden 14 and Cooper 10, telling them their sister was sick and we've got a big fight ahead of us.

Madi had a biopsy done, and then surgery to remove the tumour. After surgery she had a post MRI and we got bad news, that they had found two little ones in there so she then went and completed 30 rounds of radiation and 13 rounds of chemo and was going really good.

We were told in July last year that our baby girls tumour starting growing again and we ended up taking her over to Sydney in September for brain surgery with Charlie Teo and he removed around 80% of the tumour.

Madi has done really good in between times with family holidays and camping trips, outings with friends, and we recently went to New Zealand in January to see her family, we had an amazing two weeks then can home and Madi hasn't been the best.

She is having more seizures and feeling unwell most days so we just keep thinking positive for our girl to pull through this and fight this horrible disease, Madi had been diagnosed for two years on the 19 February 2016.

Thank you so much for sharing your beautiful girl and family with us helping to raise awareness.
We will fight for a cure Madi, (Charlie Teo saved my life once too), don't ever give up hope you are a hero.
Love Keely xx

Declan

Declan

Glioblastoma Multiforme
Declan
Declan

Glioblastoma Multiforme

This wonderful, funny, courageous and beautiful Golden Octopus Angel Hero is someone very dear to my heart.
Declan was my friend and my inspiration to never give up fighting for these kids.
His amazing family were also an inspiration and Emma his very close cousin set up Project Declan that will forever honour Declan and raise money for childhood cancer research so families and children do not have to go through what they went through.

The Mt Cootha Challenge that Project Declan organise each year is an amazing show of strength and endurance.
Marty (Declan's Dad) and Uncle Tony ride non stop for 24hrs up and around Mt Cootha the equivalent to riding Mt Everest.
Many riders, walkers and joggers register each year to join the battle with Project Declan against childhood cancer.
We will be advertising the ride in November on our pages as well, to remind people to join in.

If you do join in listen closely at the top of the mountain. You might just hear some children laughing as they go over the top in a convertible with hands held high (and a driver that ended up with a speeding ticket later lol).
That will be Declan and a few friends on the very first ride before he passed away the following year.
I know because I was in the car.
Love you to the moon and back, miss you every day and I will never stop fighting
Love always Keely xx.

Robert

Robert

Lymphoblastic Lymphoma
Robert
Robert

Lymphoblastic Lymphoma

Our amazing Golden Angel Octopus Hero Robert.
We are so honoured that his family have shared his story with us.
This is his journey as told by his Mum Dad, Eve, Emily, Brittany, Sophie, Caleb, Tyler and Liam.

Robert Agius was diagnosed with Lymphoblastic lymphoma on the side of his head the day before his 2nd birthday, 28th November 2006. This didn't stop our Friendly Spiderman loving boy. He spent a lot of time in Brisbane having, chemotherapy, CT scans, and endless needles but always let the Drs treat him without a fuss.
When Robert was 1st diagnosed with cancer, he only had 1 sibling, Eve. She looked up to Robert as her superhero. He loved her back with all his heart. But soon after along came Emily and Brittany, and even though so unwell, he loved them just as much.
Colin (dad) and Robert would often be seen sitting on the lounge playing Playstation, as Robert lacked energy most days. In fact, Robert would help his Dad complete all the hard levels in most games, but Robert's favourite game would have to be Spyro.
Robert fought a long and hard fight, but he never let his guard down. He even got to go to school, which was his dream, even though it wasn't for long he made everyday count.

Like most kids, he loved Kinder surprises. You would often see him playing with the toys from the egg in his room. In fact, with Robert took his last breath, he had his bag of kinders tucked up under his arm.

Robert lost his battle here in earth on the 12th June 2010. His memory will live on forever. He now has another 4 brothers and sisters, Sophie, Caleb, Tyler and Liam, who even though have never met him, know him really well.

Forever our Superhero, loved with every part of us always.

Mum, Dad, Eve, Emily, Brittany, Sophie, Caleb, Tyler and Liam.

Thank you so much for sharing your gorgeous little superhero with us, we are honoured to be able to share him with the world.
Beautiful Robert you truly are a hero in every sense of the word.
I will keep fighting to change the way Childhood Cancer is recognised and one day hopefully find a cure.
All my love Keely xxxx.

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