Angels & Heroes

Meet the beautiful faces of Childhood Cancer.
Every one of these little heroes has been through more in their young lives than anyone ever should.

Not all superheroes wear capes

Daphnie

Daphnie

Langerhans Cell Histiocytosis
Daphnie
Daphnie

Langerhans Cell Histiocytosis

Our absolutely gorgeous Golden Octopus Hero is a little country cutie Daphnie.
She is just the most beautiful and toughest little girl you could ever wish to meet.
Daphnie has the same cancer as I do, unfortunately there is no cure but she is a fighter and she will win.
Her amazing family have so kindly shared her story with us to help raise awareness for childhood cancer but also to raise awareness that LCH is a cancer that people don't even realise exists.
Thank you so much, this is her story as told by her loving family Sarah, Clinton, Callum, Ebonnie and Milton.
With help from her dogs Grunt and Jacko and all the chickens. Xx

Daphnie was 10 months old on the 13 march 2014 when we got the devastating news that our little girl has multi system Langerhans Cell Histiocytosis (LCH).
Daphnie had LCH in her orbital region, liver, spleen, skin and bone marrow.
Daph has been on numerous different chemo treatments, relapsing twice on treatment.
Daph has still been receiving treatment for the last 635 days and still has a long road ahead.
Daphnie is a real little fighter.

That's nearly her whole life on treatments and she still has a huge battle ahead of her.
We need more help to come together as one voice and raise awareness that our kids can't fight alone, to let the government know our kids need more than 4% funding.
Daphnie together we will fight, together we will win.
You have my promise to never give up fighting.
Love always Keely xxx

Tobi

Tobi

Cancer
Tobi
Tobi

Cancer

Tobi

Madi

Madi

Glioblastoma
Madi
Madi

Glioblastoma

Our beautiful Golden Octopus Hero this week is the amazing Madi.

Her beautiful family Natalie, Bryan, Brayden and Cooper together with Rolly her Staffy have been so kind to share her story with us.
Madi is in for the fight of her life but she is a true hero and will fight this beast.
We will be right there fighting with you Madi.

Hi our daughter Madison was 10 years old when she got diagnosed with stage 4 glioblastoma brain cancer.

Madi was an energetic girl who always loved to go out and play with her friends and loved her dancing.

Then we got hit with the worst news ever, that our baby girl had brain cancer, we sat our family down, with Madis' two brothers Brayden 14 and Cooper 10, telling them their sister was sick and we've got a big fight ahead of us.

Madi had a biopsy done, and then surgery to remove the tumour. After surgery she had a post MRI and we got bad news, that they had found two little ones in there so she then went and completed 30 rounds of radiation and 13 rounds of chemo and was going really good.

We were told in July last year that our baby girls tumour starting growing again and we ended up taking her over to Sydney in September for brain surgery with Charlie Teo and he removed around 80% of the tumour.

Madi has done really good in between times with family holidays and camping trips, outings with friends, and we recently went to New Zealand in January to see her family, we had an amazing two weeks then can home and Madi hasn't been the best.

She is having more seizures and feeling unwell most days so we just keep thinking positive for our girl to pull through this and fight this horrible disease, Madi had been diagnosed for two years on the 19 February 2016.

Thank you so much for sharing your beautiful girl and family with us helping to raise awareness.
We will fight for a cure Madi, (Charlie Teo saved my life once too), don't ever give up hope you are a hero.
Love Keely xx

Declan

Declan

Glioblastoma Multiforme
Declan
Declan

Glioblastoma Multiforme

This wonderful, funny, courageous and beautiful Golden Octopus Angel Hero is someone very dear to my heart.
Declan was my friend and my inspiration to never give up fighting for these kids.
His amazing family were also an inspiration and Emma his very close cousin set up Project Declan that will forever honour Declan and raise money for childhood cancer research so families and children do not have to go through what they went through.

The Mt Cootha Challenge that Project Declan organise each year is an amazing show of strength and endurance.
Marty (Declan's Dad) and Uncle Tony ride non stop for 24hrs up and around Mt Cootha the equivalent to riding Mt Everest.
Many riders, walkers and joggers register each year to join the battle with Project Declan against childhood cancer.
We will be advertising the ride in November on our pages as well, to remind people to join in.

If you do join in listen closely at the top of the mountain. You might just hear some children laughing as they go over the top in a convertible with hands held high (and a driver that ended up with a speeding ticket later lol).
That will be Declan and a few friends on the very first ride before he passed away the following year.
I know because I was in the car.
Love you to the moon and back, miss you every day and I will never stop fighting
Love always Keely xx.

Robert

Robert

Lymphoblastic Lymphoma
Robert
Robert

Lymphoblastic Lymphoma

Our amazing Golden Angel Octopus Hero Robert.
We are so honoured that his family have shared his story with us.
This is his journey as told by his Mum Dad, Eve, Emily, Brittany, Sophie, Caleb, Tyler and Liam.

Robert Agius was diagnosed with Lymphoblastic lymphoma on the side of his head the day before his 2nd birthday, 28th November 2006. This didn't stop our Friendly Spiderman loving boy. He spent a lot of time in Brisbane having, chemotherapy, CT scans, and endless needles but always let the Drs treat him without a fuss.
When Robert was 1st diagnosed with cancer, he only had 1 sibling, Eve. She looked up to Robert as her superhero. He loved her back with all his heart. But soon after along came Emily and Brittany, and even though so unwell, he loved them just as much.
Colin (dad) and Robert would often be seen sitting on the lounge playing Playstation, as Robert lacked energy most days. In fact, Robert would help his Dad complete all the hard levels in most games, but Robert's favourite game would have to be Spyro.
Robert fought a long and hard fight, but he never let his guard down. He even got to go to school, which was his dream, even though it wasn't for long he made everyday count.

Like most kids, he loved Kinder surprises. You would often see him playing with the toys from the egg in his room. In fact, with Robert took his last breath, he had his bag of kinders tucked up under his arm.

Robert lost his battle here in earth on the 12th June 2010. His memory will live on forever. He now has another 4 brothers and sisters, Sophie, Caleb, Tyler and Liam, who even though have never met him, know him really well.

Forever our Superhero, loved with every part of us always.

Mum, Dad, Eve, Emily, Brittany, Sophie, Caleb, Tyler and Liam.

Thank you so much for sharing your gorgeous little superhero with us, we are honoured to be able to share him with the world.
Beautiful Robert you truly are a hero in every sense of the word.
I will keep fighting to change the way Childhood Cancer is recognised and one day hopefully find a cure.
All my love Keely xxxx.

Ella

Ella

Acute Lymphoblastic Leukaemia
Ella
Ella

Acute Lymphoblastic Leukaemia

Our absolutely gorgeous Golden Octopus Hero all the way from Bundaberg Qld is the beautiful Ella.

Ella's family, her Dad Adam and Mum Emma and beloved dog Louie, have so kindly shared her story with us.

Ella was diagnosed with ALL (Acute Lymphoblastic Leukaemia) just after her 3rd birthday in 2014.
She had no symptoms and had always been a happy healthy child. Then she fell one day on her trampoline and hurt her knee.
I wasn't too worried but then she wouldn't walk at all and was really upset. Our GP sent Ella for a blood test and her results came back saying her white cell count was very low.
Off we went to Brisbane for a bone marrow aspirate and we had no idea it was going to be leukemia....

She was diagnosed and we weren't allowed home for 5 weeks. She has managed her treatment quite well with some transfusions along the way for blood and platelets.
We are from Bundaberg and the support from our family has been amazing. My parents (Julie and Peter) and my husbands mum (Diane).
Also my brother and his partner John and Adam have been there to make us smile.

Ella is now in maintenance and she will be finished treatment at the end of this year.
We've met some beautiful people along the way and I couldn't be more prouder of my girl for her bravery.
The more people are aware of childhood cancer the more we can spread the word.
It needs more funding and more research, our government needs to listen to us. These kids endure so much and it's tough on their little bodies.

She loves playing in her cubby and going fishing with her grandad. She has also started kindy and loooooves that.

Ella is our bravest hero and our world,
Love Mum, Dad and Louie.

Thank you Emma and Adam so much for sharing your beautiful girl with us.
We definitely need the government to listen, our kids are our future, and a lot of people don't realise that by supporting childhood cancer research they are automatically supporting adult research as all new drugs need to be trialled on adults first to see if they work and then are trialled on children so the adults win out as well.
Beautiful Ella keep fishing amazing girl, with your Grandad and try hard at kindy because we are going to keep fighting for gorgeous children just like you.
All my love Keely xxx

Anthony

Anthony

Cancer
Anthony
Anthony

Cancer

Anthony

Kyra

Kyra

Acute Lymphoblastic Leukaemia
Kyra
Kyra

Acute Lymphoblastic Leukaemia

Our gorgeous and amazing Golden Octopus Hero is beautiful Kyra.

Her amazing family Jessica, David and Rhianna, Phil, Cody, Shannon, and Narla have so kindly shared her story for us all.

I have a gorgeous, beautiful, kindest hearted 8 year old daughter Kyra who has just been diagnosed with Pre B Acute Lymphoblastic Leukaemia. It took the doctors 2 months to diagnose her, so she has been through so much already before we got the diagnosis. We are only 2 weeks into our journey from the day we found out she had ALL. We are all still shattered and trying to come to terms with this horrible news. She is fighting like a warrior and we are so proud at how well she is doing. Everyone mostly points out that after every gruelling procedure, treatment, everything she goes through, she still manages to smile. She is amazing!

Her journey so far is.... On The 1st of April 2016, Kyra was diagnosed with Acute Lymphoblastic Leukaemia. As a family we were devastated but we stuck together and gave Kyra the support she needed. Because she is 8 and we had to be upfront and honest about it to her, Kyra is finding it hard to understand why it is her that has to get sick. She is mostly scared about losing her hair because she just loves her hair! She has had 2 rounds of chemo, 2 lumbar punctures and 2 lots of chemo in her spinal fluid, a blood transfusion. She also is on more medication because her body had a bit of a bad reaction to the steroids she has to take. She always has a smile on her gorgeous face through the good and bad times.

Kyra's favourite animal is a bunny, she LOVES rabbits. Her hobbies are sewing with her Nanna, ballet, playing cards and board games. She loves a challenge and is a very smart, talented and gifted young girl.

Thank you so much for sharing your story, Kyra stay brave beautiful girl.
We all ask the question why did I have to get sick and no one can answer that but believe me we need to stay brave and keep smiling and we get through it.
That doesn't mean it isn't going to be tough on all of us and we don't deserve to be sick.
Hopefully one day we won't need to be sick anymore. We just need to keep fighting together and hopefully one day there will be no more cancer for kids or anyone.
Love always Keely xxx

James

James

Hepatoblastoma
James
James

Hepatoblastoma

This beautiful Golden Octopus Angel Hero is the amazing James.

Thank you to Gail and Richard for letting us honour your beautiful boy.

"On the 7th of February 2011 James's life was turned upside down. At only 5.5 years old he was diagnosed with Hepatoblastoma or in easy terms Liver cancer.

He'd only been at school for one week when he was pushed off the playground. A few days later he ended up in hospital complaining of stomach pains. As a parent we were just thinking appendicitis. How wrong we were. After an ultra sound, an MRI and eventually a biopsy our worst nightmares were answered. Our sweet little boy had cancer. A multitude of thoughts went through my mind

"Kids don't get cancer.. Only adults do"
"How could this have happened to us, things like this happen to "other" people"
And the worst "My child has cancer, is he going to die?"

After assurances from our oncologist that this was a better type of cancer to have, easily treatable, we felt a bit better.

Over the course of the next few months, James had round after round of Chemo, some of which worked - some didn't. We were also told that he would need a liver resection, but they couldn't do it in Adelaide (where we live) and would have to go to Melbourne.

Come Easter 2011, chemo wasn't doing its job. The tumour wasn't shrinking so not only did we have to go to Melbourne for surgery, he also needed a different type of Chemo over there.

We managed to get through Mothers Day at home, but had to be in Melbourne the following week. After a long 10 days in hospital battling fevers, pains and numerous other side effects, we were given great news. The chemo was working and James would be able to have surgery soon.

The 15th of June 2011, (the day after his 6th birthday) James went in for his liver resection. 8 hours later, his Doctor came out and told us that he was in the clear. The surgery had gone well, they had removed 5/6s of his liver, and the only bit remaining was healthy and would regrow to full size within 6 weeks. We were sooooo relieved.

We spent the next few weeks in Melbourne while James recovered, and headed home in early August. We were so happy to be heading home, starting life again, James was going back to school and we were as normal as a childhood cancer family could be.

On the 7th of September, James had to head back to the hospital for another MRI as his blood tests had shown his AFP levels were a bit high. The next day, our whole world crumbled again. Not only had James's cancer come back, but it was in 3 different spots, including 6 spots on his lungs. It was now a matter of allowing him to live his life (what was left of it) to the fullest.

Mid September we headed to QLD for our Make a Wish holiday, and by the time we got home James's health had deteriorated quite rapidly. Early October James had a morphine pack attached to his port to help with his breathing and pain. Day by day he became more and more detached and lethargic.

At 6:05pm on Monday 17th October 2011 James gave up his gallant fight. Surrounded by those he loved and cherished - his Mum, Dad, Brother and Uncle.

Fly Free Beautiful boy, you will always be remembered as a hero of this horrible disease."

Written by his loving family Gail, Richard, Harrison and Andrew.

All our love to your family love Keely xx

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